This past weekend we took a road trip to St. Louis so Katee could be seen at the arthrogryposis clinic at Shriner's Hospital for Children.
We left on Thursday and took our time getting there, enjoying stops/time together along the way.
Shriners had us stay at Haven House St. Louis and we LOVED our time there. I highly recommend it for medical families traveling to St. Louis. The staff is so friendly and we all had lots of fun playing in the gym and playroom. It was also nice to connect with other families seeking medical assistance for their children--it creates an automatic bond.
We spent over 3 hours Friday morning at the hospital. Katee was thoroughly evaluated by a team of doctors and therapists. Lots of x-rays and measurements were taken, and we learned new ways to stretch her joints. All the doctors and therapists said she was doing great and that we are on the right track with her care. So great to hear! Our main purpose for this trip was to seek a second opinion before proceeding with Katee's hip surgery. The surgery described (along with the risks and outcomes) was the same as what our current orthopedic doctor suggested. Arhtrogryposis hips are tricky compared to regular hip dysplasia and the surgery will be difficult . . .but it looks like we need to do it in the next 6 months. While we didn't learn a lot of new information, we felt the trip to the arthrogryposis clinic was worth our time.
After lunch and brief naps we headed out to see the St. Louis Arch!
It was absolutely beautiful.
Katee called it a "rainbow"; and, if you know her, you know that rainbows are her favorite. ;) (and aren't my boys cute??!)
And the best part?
My friend, Tera, who I met online through adoption, drove from Indiana to meet us that afternoon!! She was just as sweet and genuine as I thought she would be and we had a great time together. Tera has been such an encouragement to me through our process of bringing Katee home. I emailed her a lot during our process and she encouraged me and answered my questions and pointed me to Jesus through it all.
Our kids hit it off right away, which was an added bonus.
Tera's older two girls took great care of Katee the entire weekend and Katee loved their attention.
Our Chinese princesses were a little unsure of each other, but they did have a cute conversation regarding their next birthday parities. I loved seeing our girls together! Pure sweetness.
I think my kids liked playing in the fountains best. I kinda did too. ;)
I was so impressed with Katee's endurance on this trip. She walked. And walked. And walked. It wasn't all that long ago when she could only walk (with a walker) about 10 feet before tiring. Such progress!
We went to the zoo the next morning, had lunch, said goodbye to our new friends, and headed home. I'm thankful we had this time together as a family and also thankful for friendships deepened.
1 day ago