Not going to lie: That first week with the spica cast was pretty tough. We were administering pain meds around the clock, not sleeping great, and poor Katee wasn't the happiest and was pretty demanding (can't blame her). It kinda felt like we brought home a new baby as the older two were out of sorts/adjusting to our new normal, meals were being brought (what a life-saver!), grandparents were coming to help . . . and it took me 10 minutes to awkwardly change her diaper. ha!
After that first week/week and a half Katee's pain was better and she's really done pretty well. I'm amazed at how quickly kids adapt. She still isn't sleeping (or eating) great, but her days have been good overall. We've tackled the dentist office, haircuts, story time, Bible study, church, and even Walmart (although once was enough for that!). Everything takes a bit more work and my days feel more demanding, but I truly am amazed at how content she has been in this cast.
We borrowed a special spica cast chair/table from a sweet family, but it didn't work well with how Katee was casted. However, we do use the top of the table over her wheelchair. This is how she eats and plays. It's worked really well. She spends hours a day playing with her Littlest Pet Shop animals, stickers, paints, etc. using this set-up.
This girl has been spoiled with presents too. The cape and mask are from a sweet blog reader and the rainbow shirt is from some faraway friends. (In fact, all this spoiling has caused Calla to want a body cast so she can "relax all day, watch extra TV, and get lots of presents". ha!)
I wasn't sure what this fall would look like as far as family activities, but it has worked just fine to do some special, seasonal things with Katee in her cast and wheelchair.
We've picked apples at the apple orchard, attended a fun fall festival, and had lots of park play dates.
Katee's cast comes off next Tuesday. She can't wait! Almost every morning she asks me if we are closer to getting her cast off. Today, we got out the calendar and counted the days and she did a little dance. The day is coming!
I can't wait to snuggle her close again. I see pictures like the one above and it seems so strange to see her upright and on her feet. She will be stiff and sore coming out of that cast and will have to re-learn how to stand and walk. Because of her arthrogrypsosis, we have physical therapy scheduled twice a week starting the week after the cast comes off. Its really important that she starts using that joint to avoid stiffness.
It's not easy to see your child suffer or see her become frustrated with life's circumstances. But I do know that God is training me to look to and trust Him through this season. I've seen how He refreshes us all and provides encouragement in the midst of hard. For that I am so thankful.